IF & SBF 28th International Conference on Spina Bifida and Hydrocephalus

  • 10 Aug - 12 Aug, 2018
  • Le Meridien, New Delhi, India

Programme

Timing: From 9.00 AM TO 1.00 PM
JOINT SESSIONS with WHO SEARO
Lectures: TOPIC SPEAKER
How Big is the Epidemic in Your Country !
Fortifying the World against SB-F & Anencephaly-F
Prof Godfrey Oakley, USA
Director, Center for Spina Bifida Prevention
Emory University, Atlanta, GA, USA
The Joy of …. Parenting a child with a Birth defect Mr. T V Sudhakar, India
Vice President Kotak Mahindra Bank, Mumbai India
t-v-sudhakar
Health Insurance for the Fetus and Child born with a Birth Defect From Ministry of Health and Family Welfare, India  
Role of National Associations & Support Groups in the care and Rehabilitation of individuals born with Birth Defects tbc, Ireland
Ethical, religious and cultural issues affecting the prevention and management of birth defects From USA -To be Confirmed
The story of Fetal Surgery for birth defects From USA -To be Confirmed
Born with SB, becoming a doctor and onto becoming president of the IF Dr. Margo Whiteford, UK (Scotland)
Consultant Clinical Geneticist, President - IFSBH

Timing: From 1.00 PM to 2.00 PM Lunch Break

Timing: From 2.00 PM TO 3.30 PM
Panel Discussion on BIRTH DEFECTS
Moderator Panelists  
Dr. Santosh Karmarkar (India)
Consultant Pediatric Surgeon, Founder trustee - Spina bifida Foundation
Parents from India, SEA, Europe, Africa etc
Ped Surgeon, Obstetrician
Public Health Officials from India & SEA
Geneticist
Fortification expert
Ultrasonologist

Timing: From 3.30 PM to 4.30 PM INAUGURAL / WELCOME PROGRAMME OF IF CONFERENCE 2018

Timing: From 5.00 PM to 8.00 PM OUTDOOR SIGHTSEEING FOR IF DELEGATES

7.00 PM ONWARDS DINNER FOR IF DELEGATES AT LE MERIDIEN

Timing: From 9.00 AM TO 1.30 PM

Lectures TOPIC SPEAKER
Holistic care and timelines Dr. Amrish Vaidya (tbc)
Antenatal diagnosis and problems of NTDs Dr. Chander Lulla
Consultant fetal medicine specialist
Jaslok Hospital
Mumbai
The Genetics and Epigenetics of NTDs India Dr. Madhulika Kabra, Delhi
Additional Professor & Officer-in-Charge,
Genetics Unit, Department of Pediatrics,
AIIMS, Delhi, India
SB Fertility and Pregnancy (tbc)
Pediatric Hydrocephalus State of The Art Dr. Benjamin Warf
Hydrocephalus / Spina Bifida Chair
Boston Children's Hospital
Professor of Neurosurgery
Harvard Medical School
Boston, USA
SB success stories 1 Mr. Kishor Hendre & Mr. Parth Hendre, Mumbai
(tbc)
Urinary Incontinence in SB State of the Art Dr. Santosh Karmarkar, (India)
Consultant Pediatric Surgeon,
Founder trustee - Spina bifida
Foundation
Management of foot and ankle Dr. B. D. Athani
(tbc)
SB success stories 2 Mr. Moffat Mukwala, Businessman, Zambia
(Father of Phyllis)
Urotherpay- making the bladder Gladder - A team effort (tbc)
Lectures TOPIC SPEAKER
Introduction & Making the Invisible VISIBLE Dr. Lieven Bauwens
Secretary General, IF,
Member – Child Help
Life with SB in Rural India (short film) a film by Spina Bifida Foundation t-v-sudhakar
SB –Financial Planning for Medical care & Future Life Mr. T V Sudhakar, India
Vice President Kotak
Mahindra Bank, Mumbai India
Adolescence and Sexuality Issues – In the East and the West Dr. Amy McPherson
Scientist in the Bloorview Research Institute
Assistant Professor- University of Toronto,
Canada
Dr. Manoj Bhatawdekar
Psychological Medicine
Psychiatrist, Mumbai


SB: Schooling and Education in India Mrs. Vinita Jindel's, India
Founder ISBA 1999
Works to connect Parents & Individuals with Spina Bifida
Inclusive Education – what can we learn from different perspectives Dr. Ruchi Singh
(tbc)
Yoga and Mental health in SB Ms. Ewa Kampelmann
Dy. Secretary General, IF
Yoga Specialist
Sports in SB Mr. Nicola Busata
Ski instructor specialised in adaptive sports
Freerider Sports Events, Varese, Italy
SB in SE Asia - Care and rehabilitation (tbc)
Pressure Sores-Preventionand Care (Orthopaedic) Dr. Hitesh Shah
Associate professor
Pediatric Orthopaedics services
Manipal
Pressure Sores-Preventionand Care (Plastic surgeon) (tbc)
Management of the Hip problems in Spina Bifida Dr. Hitesh Shah
Associate professor
Pediatric Orthopaedics services
Manipal

Timing: From 2.30 PM TO 4.30 PM

Lectures TOPIC SPEAKER
Micronutrients and Birth Defects Mr. Rohit Shelatkar
Nutrition Expert, Vice President –
Meyer Vitabiotics
TISSUE ENGINEERING/Artificial Organs Co-Director, Surgical
Bioengineering Laboratory (tbc)
The real Incidence and Prevalence of NTDs in India. Dr. Anita Kar, Pune, India
Professor & Director
School of Health Sciences
University of Pune
Role & Promise of Stem cells in NTDs Co-Director, Surgical
Bioengineering Laboratory (tbc)
View Points–Denying treatment for Birth Defects -Is it right?
(2 speakers – no discussion)
Mr. Pierre Martens
Director Child - Help International
Dr. Anurag Krishna
(tbc)


Timing: From 9.00 AM TO 1.30 PM Lunch Break ( 1.30-2.30 pm)
PARALLEL SESSIONS FOR FAMILIES
Lectures: TOPIC SPEAKER
Introduction & Making the Invisible VISIBLE Dr. Lieven Bauwens
Secretary General, IF,
Member – Child Help
Life with SB in Rural India (short film) a film by Spina Bifida Foundation t-v-sudhakar
SB –Financial Planning for Medical care & Future Life Mr. T V Sudhakar, India
Vice President Kotak
Mahindra Bank, Mumbai India
Adolescence and Sexuality Issues – In the East and the West (tbc)
SB: Schooling and Education in India Mrs. Vinita Jindel's, India
Founder ISBA 1999
Works to connect Parents & Individuals with Spina Bifida
Inclusive Education – what can we learn from different perspectives (tbc)
Yoga, Sports and SB Ms. Ewa Kampelmann
Dy. Secretary General, IF
Yoga Specialist
SB in China - Care and rehabilitation (tbc)
Pressure Sores And Ulcers Prevention and Care By Plastic Surgeon (tbc)
Problems of the Hip & Spine in Spina Bifida (tbc)

Timing: From 4.30PM to 6.00PM

Living, Loving and Laughing with SB in different parts of the World
Moderato Panelists  
Ms. Renu Victor (India)
Union Bank of India
Dr. Santosh Karmarkar
  Mr. Lumbwe (Africa)
  Mr./ Mrs. Gamage (Sri Lanka)
(tbc)
  Mr. David Morrissey (USA)
International disability program consultant
Board of directors of the Spina Bifida Association
Executive Director of the United States International Council on Disabilities.
(USICD)
  Ms. Elena Monzon (South America)
Presidenta APEBI
Argentina

The Tethered Cord in Spinal Dysraphism

Timing: From 9.00 AM TO 1.30 PM

Lectures TOPIC SPEAKER
About the IF Global Experts Panel Dr. Margo Whiteford
Our ideal SB Clinic From Manchester (tbc)
Urodynamic Studies and their role in care of SB Dr. V. Sripathi
(tbc)
Orthopaedic evaluation & overview Dr. Alaric Aroojis
Secretary, Paediatric Orthopaedic
Society of India (POSI)
Medical Director, Maharashtra
Clubfoot Programme
Management of bowel incontinence Dr. Kanishka Das
Professor and Head,
Paediatric Surgery,
All India Institute of Medical Sciences(AIIMS)
Bhubaneswar , Odisha
Paediatric Scoliosis - current thinking Dr. Arvind Jaiswal
Head of The Department of Spine Surgery
Primus Super Speciality Hospital, Delhi
SB success story Mr. Moffat Mukwala, Zambia
Orthotic Management in SB -role of Dynamic Spliniting Dr. Rohantbc
Mobility Devices and locomotion in SB tbc
Role of neurophysician in SB Dr. Anahita Hegde (tbc)
Botox in the Urinary Bladder Dr. Ibrahim Ullman
Pediatric Urologist
Ege University Faculty of Medicine
Department of Pediatric Surgery
Chief, Division of Urology, Turkey
Lectures TOPIC SPEAKER
Becoming a mother with SB VISIBLE (tbc)
SB, Fertility and Pregnancy (tbc)
Urinary Incontinence No Worries Dr. Santosh Karmarkar
Succesful management of Bowel Incontinence Dr. Kanishka Das
Professor and Head
Paediatric Surgery,
All India Institute of Medical Sciences(AIIMS)
Bhubaneswar , Odisha
Ageing with SB Mr. Cato Lie (Europe)
Board Member, IF
Usefulness of Service Dogs (tbc)
QOL issues for the care givers Dr. Urvashi Shah
Preventing Birth defects – The 7 Steps Saptapadi (tbc)
Hydrocephalus, no worries Dr. Benjamin Warf
Hydrocephalus/Spina Bifida Chair
Boston Children's Hospital
Professor of Neurosurgery
Harvard Medical School
Boston, USA
Obesity Management in SB Dr. Amy McPherson
Scientist in the Bloorview Research Institute
Assistant Professor- University of Toronto,
Canada
Employment opportunities for SB in India Ms. Ira Singhal,
Indian Administrative Service,
SDM, Alipur.

Timing: From 2.30 PM TO 5.00 PM

Lectures TOPIC SPEAKER
A dedication to Javed Abidi (a) Mrs. Jahanvi Modi
Co-founder- SBF
B.Ed and Special Educator
Mumbai, India
(b) Dr. David Morrissey
International disability program consultant
Board of directors of the Spina Bifida Association
Executive Director of the United States International Council on
Disabilities (USICD)


What I want to tell my doctor Rajshree Sood & son
The story of Fetal Surgery for Neural Tube Defects (tbc)  
Transition from childhood to adult (Panel discussion) Dr. Meenu Bajpai
VALEDICTORY SESSION  
Timing: From 9.00 AM TO 1.30 PM Lunch Break ( 1.30-2.30 pm)
PARALLEL SESSIONS FOR FAMILIES
Lectures: TOPIC SPEAKER
Introduction & Making the Invisible VISIBLE Dr. Lieven Bauwens
Secretary General, IF,
Member – Child Help
Life with SB in Rural India (short film) a film by Spina Bifida Foundation t-v-sudhakar
SB –Financial Planning for Medical care & Future Life Mr. T V Sudhakar, India
Vice President Kotak
Mahindra Bank, Mumbai India
Adolescence and Sexuality Issues – In the East and the West (tbc)
SB: Schooling and Education in India Mrs. Vinita Jindel's, India
Founder ISBA 1999
Works to connect Parents & Individuals with Spina Bifida
Inclusive Education – what can we learn from different perspectives (tbc)
Yoga, Sports and SB Ms. Ewa Kampelmann
Dy. Secretary General, IF
Yoga Specialist
SB in China - Care and rehabilitation (tbc)
Pressure Sores And Ulcers Prevention and Care By Plastic Surgeon (tbc)
Problems of the Hip & Spine in Spina Bifida (tbc)